Resources & Support

General Information on Cystic Fibrosis
Cystic Fibrosis Foundation  Largest foundation dedicated solely to CF.  A wealth of information.
Cystic Fibrosis Worldwide Cystic Fibrosis Worldwide (CFW) is a non-profit organization which has its registered office in Massachusetts, USA . CFW is dedicated to improving quality of life and life expectancy for people living with cystic fibrosis (CF).
National Cystic Fibrosis Awareness Committee  The National Cystic Fibrosis Awareness Committee exists to serve as an instrument for advancing the public’s awareness of the genetic disease, Cystic Fibrosis.
CF Europe Cystic Fibrosis Europe is the federation of national CF Associations in Europe. CFE represents persons with CF and their families in Europe.
Cystic Fibrosis New Zealand

 

CFNZ will optimise quality of life for people with Cystic Fibrosis and their families – striving for normal life expectancy.
Cystic Fibrosis Canada

 

Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF).
Cystic Fibrosis Australia

 

Cystic Fibrosis Australia funds research into better treatments and ultimatley a cure for CF. We also manage the CF data registry, lead the national research program, conduct a biennial CF Conference, and support the quality improvement program including the clinic peer review program and the CF Standards of Care and Infection Control Guidelines.
Boomer Esiason Foundation  The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, education and quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.
Mayo Clinic Comprehensive information on CF written by medical professionals (not intended for diagnosis or treatment).
Blooming Rose Foundation The Blooming Rose Foundation (BRF) was created to give hope to families immediately following Cystic Fibrosis diagnosis. Our goal is to positively reach the CF community by offering an online resource for individuals, families, and friends to find up to date research, links, and ways to connect with other families and adults with CF. 
www.wikicf.com Wikicfi is an open, free website for and by people living with CF, their families and friends. It is created and managed by CF Europe. All content is reviewed by professionals to ensure it is of the highest quality.  Wikicf is a place to connect and network. You can exchange practical information with others, from the latest treatments to tips on living with CF.

 

Supports Groups and Social Media
Facebook Comprehensive listing of Facebook pages devoted to CF.
Cystic Fibrosis.com CysticFibrosis.com is one of the world’s largest social media networks dedicated exclusively to the cystic fibrosis community. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.
Cystic Life An online community for patients to find other struggling with the same condition.
Daily Strength This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.
CF Infants and Toddlers A social media group for parents and caregivers of children with CF to share information and seek support.

 

Cystic Fibrosis Mothers Cystic Cystic Fibrosis Mothers is a website dedicated to providing information on parenthood to women with Cystic Fibrosis across the world. Our aim is to provide a central online resource for the global Cystic Fibrosis community. Fibrosis Mothers is a website dedicated to providing information on parenthood to women with Cystic Fibrosis across the world. Our aim is to provide a central online resource for the global Cystic Fibrosis community.
CF Family Connection The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families.
CFRI Cystic Fibrosis Caregivers Support Group A comprehensive listing of support sites.
Coping While Caring for Someone With Cystic Fibrosis From the Cystic Fibrosis Foundation
Parent and Guardian Guidance From the Cystic Fibrosis Foundation

Learn More About CF

Learn more about cystic fibrosis and the various treatment options.

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